Families often need support, both during the diagnosis process and post-diagnosis.

A limited number of Daisy Chain services can be accessed once a formal diagnosis process has begun, including our activity days, toddler group and Links parent support group. 


Other Support Services

Other local sources of information and support include the following:

Stockton United for Change (SUFC)

SUFC are a group of parents and carers of children with Special Educational Needs (SEN) and disabled children aged 0-25 who work alongside our local authority, education, health service and other service providers to make sure the services they plan, commission, deliver and monitor meet the needs of children and families. They do this through active parent participation and ensuring parents have a voice.

Contact details:

07935 447375
http://www.stocktonunitedforchange.co.uk/ 
[email protected] 
https://www.facebook.com/sufc.stockton 

For families outside the Stockton area, there are similar parent participation forums in each borough, including:

Middlesbough - Parents 4 Change

07584 055639

Email: [email protected] 
Website: http://www.parents4change.co.uk/ 

Darlington c/o DAD

01325 254848
Email: [email protected] 

Redcar and Cleveland - The Parents and Carers Alliance

01642 455771

Website: http://www.nnpcf.org.uk/ 

Hartlepool - 1 Hart 1 Mind 1 Future

07896 054361
Email: [email protected] 
Website: www.onefuture.org.uk 

Contact a Family

Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability. In the North East, they provide services through their regional office in Newcastle and home-based workers. Working at a local and regional level, there is up-to-date information on local services and support for families.

The North East team offers:

  • - advice, information and support to help families to find out what is available locally
  • - workshops, events and opportunities to meet other families with disabled children
  • - workshops for parents/carers working with families
  • - regular newsletters and e-bulletins with useful information for families

Website: www.cafamily.org.uk 

PALS (Patient advice and liaison service) for Stockton families

You can talk to PALS who provide confidential advice and support to patients, families and their carers, and can provide information on the NHS and health related matters.

PALS would like to know about things the service is doing well, or if you have any suggestions about how services can be improved.

You can find the patient experience team in the main concourse at the University Hospital of North Tees opposite the tower block lifts.

Members of the team are available to speak to visitors face-to-face between 1.30pm – 4.30pm Monday to Friday or by phone between 9am and 4pm.

Tel:01642 624719
Email: [email protected]


Educational Support

SEND IASS

Stockton Special Educational Needs and Disability Information, Advice and Support Service (SEND IASS) (formerly Parent Partnership Service) is a free, impartial and confidential service. They provide advice, information and support on all matters relating to special educational needs and disabilities (SEND) to:

  • parents/carers of children and young people with SEN or a disability
  • young people up to the age of 25 with SEN or a disability

Contact details:

Caroline Fell, SEND Information, Advice and Support Officer
01642 527158
Email: [email protected] 
Website: www.stockton.gov.uk 


IPSEA

Information services for general legal enquiries, and will signpost you to fact sheets and resources on their website.

Their advice line provides legally based information and next step advice on any educational issue that is the result of your child's special educational needs or disability. This could include problems with schools, requesting statutory assessment, statements and Education, Health and Care Plans, annual reviews, disability discrimination and exclusion.

The Tribunal Helpline gives nest step advice on appeals and disability discrimination claims to the SEND Tribunal. The Tribunal Helpline will also be able to talk to you about their Tribunal Support Service and, if eligible, will be able to make a referral for support from a volunteer.

Website: www.ipsea.org.uk 


Aspire

Independent Support for Education Health Care Planning (EHCP) and Assessment SEND.

Independent support is available to all children, young people and their parents/carers who are either having their statement of SEN reviewed and transferred to an Education, Health and Care Plan (EHCP) or who are new to the SEND assessment process - your Local Authority is working in partnership with Aspire Personalised Care Solutions to make this support available.

Contact details:

Aspire Personalised Care Solutions
Independent Supporters
Freephone 0800 270 7437
0191 383 7430
[email protected] 

Autism Links Website

Charities, support groups, and specialist service providers, are all ready to share advice and experience whenever you need it. Autismlinks.co.uk is dedicated to making those helpful and sometimes vital links, it covers who to talk to, where to go and contains lots of helpful advice all in one place.

Website: www.autismlinks.co.uk